Have you or someone you know ever been affected by loss or impaired sense of smell ?

Before 2020 over 3 million people in the UK (5% of the population) were estimated to be affected by smell loss.  Now around a further 1 million people are also thought to have persistent problems following a COVID-19 infection. Fifth Sense and the University of East Anglia. are trying to get participants for the research and awareness raising event.

Some people lose their sense of smell completely (anosmia). Others may experience a reduced sense of smell (hyposmia), unpleasant distorted smells (parosmia) or smell hallucinations (phantosmia).  These changes may be accompanied by loss of or changes to the sense of taste.

Symptoms can lead to depression, anxiety and social isolation with some people experiencing weight changes due to reduced or altered appetite. Our work with patients shows a lack of access to medical treatment and to mental and nutritional health support for those living with smell disorders. We are also concerned that smell disorders also leave people vulnerable to potential hazards, such as not being able to smell gas or whether food is safe to consume.

Smell and taste disorders (SATDs) affect everyone, regardless of background and ethnicity. We know that people from minority communities are less likely to report or seek help for these sensory impairments.  The University of East Anglia and Fifth Sense, the charity for people affected by smell and taste disorders, are running a research project to try to understand the reasons for this.

If you are interested in taking part in our project or would like more information then please contact Helen Rhodes, Engagement and Education Officer at Fifth Sense: [email protected]

The deadline to register interest is 14th February 2024